Volume 28 | December 4, 2024
For many of us in the osteosarcoma community, the holidays are hard. But rising above the difficult emotions that the holidays can trigger is our immense gratitude for our community that works together to make it better for kids with osteosarcoma. Here are Agents who Make It Better and some ways to be an Agent for Better:
- Our Junior Advisory Board which provides honest patient perspectives and keeps the patient voice front and center. Join the MIB Community on Capitol Hill in February!
- Our OsteoWarriors who donated their art to create our gorgeous and festive holiday cards
- Our Family Funds who tirelessly raise funds to support patient programs and research. Read about one of our Family Funds - Because of Buddy.
- Our Donors who generously support our programs and research. Join them and become a Guardian Agent!
- Our Scientific Community that selflessly collaborates, indefatigable in its efforts to advance treatment and improve outcomes. Share your work at FACTOR 2025!
- Our Volunteers like our Ambassador Agents, who contribute their time and talent to make it better with us.
We are awed and inspired by the passion, dedication, and generosity of spirit in our community. Wishing you all a peaceful holiday season.
With hope and gratitude,
Ann
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MIB Agents is assembling a team to represent MIB Agents for Childhood Cancer Action Days on the Hill in Washington DC this winter. Action Days 2025 is a two-day, in-person event in Washington, DC. Thursday, February 27th is a required training day. During training, you will hear from guest speakers and meet fellow advocates to help prepare you for your Capitol Hill meetings on Friday, February 28th. If you have ever wanted to share your story with our congressmen and women this is a great way to share that experience. We are at a critical point on several key policy issues that impact children with cancer and we need a strong showing of advocates at Action Days 2025. Sharing your story with members of Congress will ensure the voice of children with cancer is heard loud and clear! The Alliance for Childhood Cancer has a limited number of scholarships. Applications are due January 6, 2025. Please contact Linda Kennington lindak@mibagents.org for more information.
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As we approach the end of the year, we invite you to join us in our mission to uplift OsteoWarriors and their families. If you haven’t donated yet, now is the perfect time to give. Every gift helps sustain programs like Warrior Mail, the osTEAo AYA podcast, and OsteoBites webinars, providing vital support and connection to those who need it most.
Donate online or with any of these options.
Showcase the heartfelt talent of six beloved MIB OsteoWarriors with each stunning, original artwork. Every box includes 12 beautifully designed cards and 13 envelopes, perfect for sharing joy this season. Find the cards in our MIB Holiday Boutique for only $24 with FREE Shipping! You can also find the perfect gift or stocking stuffer for your OsteoWarrior in our Holiday Boutique. From cuddly teddy bears to mugs perfect for sipping hot cocoa, shine bright this season with our MIB Hero Earrings and festive MIB Holiday Bracelet. Give the Gift of FACTOR 2025, June 26-28 in Salt Lake City! Pre-sale tickets are now available at Early Bird pricing of $340.
Order Your Holiday Cards from the MIB Holiday Boutique
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This month we spotlight OsteoWarrior Buddy and his family. Now ten years old, Buddy has been bravely battling osteosarcoma for half his lifetime, since he was five years old. Buddy has relapsed several times, enduring years of chemotherapy, immunotherapy, experimental therapy, and over a dozen surgeries including four complex lung surgeries and below-the-knee amputation. Throughout these challenges, Buddy’s family shares how they cope, how osteosarcoma has shaped their lives, the importance of their support network and community, and what motivates them to fundraise for osteosarcoma research in honor of Buddy.
- Academic Pediatric Oncologist, MSKCC
- Assoc Professor or Professor, Tenure Track, Pediatric Sarcoma Research - UPenn
- Medical Oncologist, Sarcoma - Montefiore Einstein
- Program Head, Sarcoma - Fred Hutchinson Cancer Center: Clinical Research Division
- Medical Oncologist, Sarcoma - Mayo Clinic
- Asst or Assoc Professor, Sarcoma Oncology - Fred Hutchinson Cancer Center
- Orthopaedic Oncologist - Ochsner Health
- Clinical Faculty, Solid Tumor Focus - Riley Children's Health
- Associate or Full Professor (Program Head, Sarcoma Program) - UW
- Postdoctoral Fellow, Sarcoma Medical Oncology - MDACC
- Assistant Professor, Sarcoma - OHSU
- Sarcoma Oncologist - Georgetown Cancer Institute
- Pediatric Oncology Solid Tumor Clinician Educator - Stanford
If you have a job posting and you would like it included here, please email christina@mibagents.org.
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Watch Past Episodes and See the Upcoming Schedule
A virtual tumor review board for osteosarcoma, TURBO is open to global clinicians or researchers with an interest in osteosarcoma. Patients and families are welcome to ask their oncologists to present a case on their behalf. Join TURBO to request an invite or submit a case. NEXT MEETING DATE: January 8th at 5pm ET
- Cooperative blockade of FLT3 and ALK synergistically suppresses growth of osteosarcoma
And a huge Thank You to our Ambassador Agents for the time and care you take to help your fellow OsteoFamilies, month after month and year after year!
Learn More About Ambassador Agents
If you have a trial that is currently enrolling osteosarcoma patients, please email christina@mibagents.org.
