Ian was an energetic, soccer-loving 12-year-old boy in November of 2019 when he was diagnosed with osteosarcoma of the left tibia with metastatic disease. Before he even finished the 10 weeks of initial chemotherapy, repeat studies showed that his cancer was not responding to the standard treatment, which has not changed in over 30 years. He had an above-the-knee amputation at the end of January 2020 and then 2 weeks later started different chemo agents, as well as radiation to a few areas of metastases. The next studies were the first to show some improvement so we continued on the same treatment, knowing that it would not ultimately be an effective cure for his cancer. During this time Ian was able to get a prosthesis and begin practicing with it, even kicking a soccer ball again and walking on the beach. Unfortunately, it was not long before his cancer progressed, and Ian passed away on May 31, 2020. He was at home with his family before he went to his eternal home with his God and Savior.
FACTOR brings together the leading researchers, clinicians, surgeons, together with patient families and OsteoWarriors to Make It Better for those battling this disease.
Each year a grant of $100,000 is awarded to a project that will focus on moving research forward for osteosarcoma patients.
Browse our extensive list of osteosarcoma resources from MIB Agents and our partner organizations.
OsteoBites is a weekly webinar and podcast where we invite Osteosarcoma Experts and OsteoWarriors to share their research, hope, and innovation.
Agent GAMERS game with their fellow OsteoWarriors and OsteoSiblings.
Ambassador Agents are certified peer visitors who provide hope, understanding, and resources.
OsteoWarriors receive monthly letters of hope and cheer from MIB Agent Writers around the world.
When an OsteoWarrior transitions to hospice care, MIB Agents provides an experience or an item of comfort and entertainment.
The OsteoWarriors HQ (headquarters) brings kids and young adults who have a connection to osteosarcoma together and It. Is. Awesome!
A world with less toxic, more effective treatments and a cure for osteosarcoma.
We are devoted to creating and instilling hope with and for our inclusive and collaborative osteosarcoma community. We do this through mutual trust, transparency and compassion.
